A New Jersey mom says she posted her three-year-old son's heart surgery bill online to show how potential changes in the health care law could drastically increase out-of-pocket costs for those with life-threatening conditions.

Ali Chandra's son, Ethan, was born with a congenital heart defect known as heterotaxy. He's already had multiple surgeries which have been covered by health insurance.

Chandra is concerned that the existing ban on lifetime benefits caps — meaning insurers can stop paying expenses once medical bills reach a specified limit — may be eliminated as part of the ongoing health care law overhaul.

Chandra recently posted the bill for Ethan's most recent open heart surgery. The family's share was $500, but she said it would have cost them $231,115 if they didn't have insurance.

Learn more about Ethan's story here.

Copyright 2017 The Associated Press. All rights reserved. This material may not be published, broadcast, rewritten or redistributed.

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